Crowborough man hopes to raise £45,000 for treatment


Ben Noakes, 34, from Bracken Close, has set-up a fundraising to pay for intense chemotherapy treatment for his Multiple sclerosis (MS).

The family man from Jarvis Brook was 23 years-old he was diagnosed with MS:

I remember the day so well especially my parents faces when we were told I had MS.  I soon recovered and carried on with life as normal.  I’ve now had MS for 11 years and its been in the last five years its really taken a hold and impacted on most aspects of my life.  On a daily basis I struggle with chronic pain in my legs which impacts my balance and walking capabilities, fatigue both mental and physical, bladder control and terrible brain fog which really impacts on my speech and my memory.

Ben worked for a pensions software company in Crowborough for four years, before leaving to pursue a career as a financial advisor joining a firm in Tunbridge Wells.  However two years ago he was forced to give up work when his MS got so bad.

A GoFundMe page has been established to try and raise £45,000 to pay for Hematopoietic Stem Cell Transplantation (HSCT).  The person’s immune system is first destroyed with radiation or chemotherapy, before T-cells, found in bone marrow, are used to re-build the immune system. Similar to the treatment for leukemia.

Ben explained:

HSCT for MS in the UK is quite new and due to being in the early stages the selection criteria are very strict.   I just missed-out having it on the NHS and I cannot afford to wait.

With my MS, I never know how I’m going to be from day-to-day.  Sufferers never know whether the next relapse is the one that causes the most damage.  If we don’t try and stop the MS now I could lose the ability to walk amongst other thing.  This would impact on our lives and mostly our children’s lives.

If you would like to make a donation, click to see Ben’s HSCT treatment fund.

I adore my wife and kids and this treatment would give me a very good chance of stopping my MS from progressing and some extremely lucky people have had MS symptoms stop too.  I would love to be able to go back and provide my family the security they need.



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